#fibromyalgia

2.40am and still awake. I swear I need my brain to stop thinking 🤔 🧠 anxiety is through the roof, feel like my head is about to burst and I just desperately want some sleep 😴 #anxiety #anxietyproblems #anxietysucks #anxietyawareness #anxious #anxiousmind #cantsleep #insomniac #insomniaproblems #fatigue #chronicfatigue #tired #tiredness #fibromyalgia #fibromialgia #cantcope


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Guy's i don't have the time nor patience for negativity. If your going to write something nasty then I'm just going to block you, no more second chances. I am not an attention seeker everything I post is to help spread awareness and help people. If you think im 'complaining' to much unfollow me. This page is to do with my chronic illness life the good and the bad. So before you comment think about how your ignorant and negative words effect others. Im a strong person and it took me a lot to open up about my mental health and now i feel like I just can't talk about it anymore. . . #believeus #mentalhealthawarenesswe  #mentalhealth  #notalldisabilitiesarevisable #fibromyalgia #fibro  #fibromyalgiawarrior #pots #potsie #potssyndrome #chronicillness #chronicpain #chronicfatigue #spoonie #depression #overcomingdepression #anxiety #anxietyfighter #spoonie #health #fitness #cbd #selfcare #selflove


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My illnesses have taken a turn for the worse and for no apparent reason other than they are progressive illnesses. I’ve been spending a great deal of time working at home from my computer, sitting in one spot, because sitting and napping is about all I can do. In response to this sudden worsening, I spoke to my doctor today and they’re wanting to do another cystoscopy with hydrodistention on my bladder and that surgery will lay me out even more so I am just dreading it terribly. Are any of your doctors doing OR procedures right now? I feel like waiting until Covid-19 has calmed down would be my best option. She upped my med dosage today and put me back on Elmiron. It’s expensive and last time I had major hair loss. My health is so bad, when my nurse called she stressed to me how important it is for me to stay inside and if I go out use social distancing. A lot of people don’t understand that those of us with multiple illnesses already have compromised immune systems. And here is what I said to my husband “I don’t have a purpose, and I’m tired. My body is failing me and I don’t know why. I’ve had pain for such a long time and I don’t want to endure it anymore, and I’m just a burden.” Feeling my body getting worse has brought on all kinds of crazy anxieties and the best thing I can do is breathe and pray hard and hang on to my little dog. The physical pain definitely triggers the mental. That’s true of everybody I think. Also, living in constant pain is a total assault on a person. There is no escape from it. EVER!!! Sometimes it’s better; sometimes it’s worse but it is ALWAYS there. And it sucks. There’s no way around it. I have written before many times that the suicide rate among the chronic pain population is three times that of the healthy population. I want to be sure that people understand how serious this is and that they offer support to their loved ones who need it. They need it. I need it. And all of this gets exhausting. I pray, God, give me peace where none can be found! Give me light where I only see dark. Give me hope for a future that is uncertain. #godspurposeformypain


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Hey ladies!!! Last chance! I only have a few of these Waterfall Cardigans left in 3 colors. Also, the tanks! I’ve sold about 75-85 items of my inventory in the last week! If there’s something that you’ve been eyeing this is the time to get it ❤️⁣ ⁣ Everything up to 75% off all A&D, additional 25% off at checkout and $5.95 flat rate shipping!!! ⁣ ⁣ You can also checkout my Facebook group. I have albums by size in tops posted. I’ll be adding layers, bottoms, & dresses too. ⁣ ⁣⁣ ⁣⁣ ⁣⁣ ⁣⁣⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ #aanddstylesquad #womenstyle #agnesanddorabrandstylist #cardigans #agnesanddora #springfashion2020 #bosslady #cardigan #momboss #fibrowarrior #shoplizasboutique #chronicpain #momlife #femininefashion #outfitinspiration #fibromyalgia #fashionover60 #occipitalneuralgia #lizasboutique #softclothes #instafashion #springsweater #ootd #fashionover30 #sizeinclusive #fashionover40 #curvystyle #fashionover50


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April is probably going to be just as bad, but I'm glad to see the end of this nightmare month at least. Stay safe, stay inside xxx #oc #original #originalcontent #fibromyalgia #fibro #chronicpain #chronicillness #meme #medicinallols #spoonie #support #spoontheory #jointpain #insomnia #badday #itgetsbetter #laughteristhebestmedicine #invisibleillness #invisibledisease #covid19


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𝐀𝐂𝐓𝐈𝐎𝐍 𝐒𝐇𝐀𝐏𝐄𝐒 𝐎𝐔𝐑 𝐋𝐈𝐕𝐄𝐒⁣ ⁣ “Our words have power, but our actions shape our lives.”⁣ - @msrachelhollis ⁣ ⁣ In the world of self-love, the Mary Karen that I used to be tore myself apart with condescending and hateful words while I filled myself back up with emotional eating to heal my self-inflicted wounds. ⁣ ⁣ Those actions, shaped my life and how I viewed and treated myself for over 3 decades of my life. ⁣ ⁣ The Mary Karen I am today, the one rising above the ashes of my old self, is built with a strong sense self-worth and true self-love. ⁣ ⁣ A year and a half ago, this mirror was covered in hundreds of post-it notes that stopped me from seeing who I was but shined words of encouragement on who I wanted to become. Those notes stayed on my mirror for over 6 months. Then one day, I was looking at those notes and realized I had become my own words. And the pride I had taking down a post-note here and there over the course of the next few months was so empowering. ⁣ ⁣ The other day I was on a phone call. My inability to sit still prompted me to move around my apartment. At one point in time I looked up. And I was blown away. I barely recognize myself sometimes. The natural glow of my smile. The shine in my eyes. The structure of my body. The strength in my posture. To be honest, ⁣ ⁣ 𝘐 𝘸𝘢𝘴 𝘪𝘯 𝘢𝘸𝘦 𝘰𝘧 𝘮𝘺𝘴𝘦𝘭𝘧. ⁣ ⁣ Staring back at me was everything I was proud of and more. Because I burnt the old me to the ground and have built this woman that I am proud of and proud to share with the world. ⁣ ⁣ I can’t tell you how many people always believed this woman was inside of me but unless 𝐘𝐎𝐔 𝐁𝐄𝐋𝐈𝐄𝐕𝐄 𝐈𝐓, what other people believe is truly unattainable. It is amazing though to be able to share my hardworking and hear people from the span of my life say; finally, you see it too!!⁣ ⁣ #selfworth #selfconfidence #selflove #risingfrommyashes #celebrateyourself #lupus #lupuswarrior #fibromyalgia


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Yes my tits...errr Tink is winking at you🧚 . . Found out yesterday we need new brakes... $1200 estimate from shop! Although we need more than replacing the shoes, we are pricing them at the auto part store today. That will make it safer for the next month or so until more money arrives. We got a Heath Savings Account reimbursement today that we are doing our best to renew our licenses, Jeep registration and a couple other things...plus some tow solution! I'm scouring Craig's List for a good towbar solution we can afford! . . Lists are made, tasks being worked through! We want our mobility to be sustainable. Right now it is hampered by me having to follow in the Jeep. We can't guarantee I am able to drive, and if so for how far before my energy is wiped! We both feel with the way our world is, that being able to quickly depart is very important! . . Everything will be better in time, not the same...but better. Right now is when we heal ourselves, and figure out what is truly important! As humans we can do better, as individuals we can do better! Now is when our honest selves are shown to the world, do you react with fear or with strength? Do you uplift one another, or tear each other down? . . I had to pause typing as an elderly man came out of the store & fell down. I jumped out and helped him up and made sure he was ok. He thanked me with such a huge smile for lending him a hand, he was surprised anyone would with the current world situation. I told him that I refuse to be a part of a world where we don't help each other out. . . Yes I'm immunocompromised, yes I'm still a human who will help another if I can. If I'm meant to die by lifting someone else up...I will die proud. And I sure as hell won't die "SOCIALLY" DISTANT☀️🧚✨ . . #sunshine #iamsunshine #sunshineandpixiedust #beyourselfalways #bemythical #bemyneighbor #nomadlife #helpingothers #humankind #fibromyalgia #invisibleillness #chronicpain #spoonie #depression #ibs #cptsd #empath #warrioroflove #Lovewins #positivity #positivevibes #onerace #iloveyou


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I’m having a pretty bad POTS symptom day. Can’t get comfortable with my heart rate and blood pressure all over the place, internal & external tremors, leg pain & nerve pain. I probably would have had to use a sick day, so I’m so glad that we’re working from home & I could save that time for a future appointment or treatment. It truly does make a difference for those of us with chronic illnesses. I know there are so many individuals who have tremendous skill sets, but they have to rely on disability because there aren’t that many work-from-home jobs out there that will accommodate or even pay well. Even though I put in a full 8 hour day, I was able to conserve energy by not having to travel back and forth to the office, etc. Because of that conserved energy, I was able to work on Boutique orders and push through the pain to take Marlo for a short walk. All this to say ... in the midst of the negatives we’re all going through, I’m still counting my blessings. 💜 • • #marloann @marloanncavalier #servicedog #multipurposeservicedog #smallservicedog #servicedogteam #chronicallyill #disabled #mobilityaid #fibromyalgia #potssyndrome #posturalorthostatictachycardiasyndrome #cptsd #hypermobility #hypermobilitysyndrome #chronicfatiguesyndrome #spoonie #sickofbeingsick #babewithamobilityaid #hyperpots #hyperadrenergicpots #fibromyalgia #nervepain #internaltremors #essentialtremor #chronicmigraine #spoonelife #gratitude #blessings #grateful #stayhome #workfromhome


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Just really not doing well. So many fibro and costo symptoms. My leg has been numb for 5 days straight now, my ribs are swollen again, but the worst is not being able to formulate coherent thought processes. Currently taking t4's with codein and Illica canabis oil to try to manage everything. I can still talk, I'm just unable to think clearly. I have brain fog and feel really disoriented so my thoughts aren't making sense and it's hard to focus. So what is left to do besides sing Disney songs. #costochondritis #fibromyalgia #vaginismus #pcos #outofit #outoforder


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Meet The Panelists _ In anticipation of The Invisible Illness Summit on April 1, 2020 at 8pm EST... _ I want you to meet our panelists... _ Tamara Perry Vance (@happay_ness) is a powerful speaker that uses her incredible transformation to help others go after breaking the chains of addiction, depression and anxiety _ After a car accident left her in a hospital bed for 2 full years _ she now runs daily with a huge smile on her face. She thrives despite her pain. _ What questions do you want to make sure to ask at the Summit. Type them below, then go check out her profile. _ See you in 2 days at the Summit (link in bio) 💜💜💜


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In my last post I spoke about the effects of Candida overgrowth, a parasitic fungus that exists in our bodies in small quantities, but which can become a problem. Read that post first if you haven't. . As this can cause things like #anxiety, #depression, #exhaustion, oral thrush and vaginal infections, it deserves preventive attention, or treatment when it exists. . So what causes Candida overgrowth? . The main thing is diet. And while other factors can trigger it as well, you'll see in upcoming posts how those are each still tied to diet. . Candida's main food is sugar. That’s what it lives on. . The more sugar in your bloodstream, the more food candida has to live on and grow. Too much leads to an overgrowth and that’s when we start seeing symptoms. . And with the Standard American Diet (SAD) we have refined sugars and carbohydrates everywhere, usually under the names corn syrup, fructose, lactose or maltodextrin. . Alcohol can also fuel Candida, as it contains sugars. And when taken in high quantities it can act like a high sugar diet. . But does that mean it only occurs when eating lots of candy bars and donuts or drinking heavy every night? . No. There are so many high sugar sources many of us consume daily even when we think we're "eating healthy." . And while an actual overgrowth will take more than just cutting down on sugar, this will go far in preventing that overgrowth, and is absolutely necessary if one is being treated for it. . Sources of hidden sugars to look for are: . Grains: grains are high in sugars and Candida feeds on these. Try to cut out grains like wheat and corn and products made from these. In fact, with all the physical conditions now being linked to wheat, you may want to cut it out altogether. . While fruits offer valuable vitamins as well as pre- and probiotics and enzymes, they are high in sugar and too much can feed Candida, causing an overgrowth. . Processed protein sources (whey, pea and soy) are over 80% converted to sugar in the body and only 20% used for protein. Try to eat dietary protein or straight amino acids like PerfectAmino to cut out the excess sugars. . See the next posts for how to treat specific cases of Candida.


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Think Trying To Live In My Body Would Be More Torture 😂🤦🏻‍♀️ #fibromyalgia #interstitialcystitis #endometriosis #costochondritis


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Just like the products themselves, I couldn’t decide which shot I like best!!! They all looked pretty to me, and if you can think of anything better than a sink full of Drunk Elephant, let me know! ...I’ll wait. 🛁🚿🧼🧴🐘 . . . Reviews to come! . . . . . . . . . #Cleanbeauty #happihairday🐘 #cocominoglossingshampoo #wildmarulatanglespray #sweetpittideodorantcream #skincareroutine #tlchappiscalpscrub # #cleanskincare #naturalskincare #gifted #drunkfromheadtotoe #drunkelephanthaircare #drunkelephantbodycare #drunkelephant #happihairday #acleanbreak #selfcare #autoimmunedisorder #cleanbeauty #chronicpain #quarantineselfcare #spoonies #fibromyalgia #skincareinstagram #microinfluencer #drunkhairdontcare #drunkhairdontcare🐘


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Improvise. Adapt. Overcome. I’ve been wanting to cook for so long, but as you guys know it’s hard for me to walk or stand, so my husband bought me this stool and I was able to make this homemade meal for the first time in months! 😭 Happy tears 💜


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First EVER attempt at sewing something like this... It ain’t Horrible as a template, but i sure do have a lot of work to do. #truecooks #truecooksstreetteam #chef #cheflife #spicology #healthfirst #fibromyalgia #bipolarrocknroller #dolessbetter #chefninja #boldric #tilitnyc #headleyandbenett #supportbluecollar If ANYONE is interested, Hit me up in my DMs...


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